fibromyalgia and how it shapes my day

Every day is a different for me having this condition does not mean 'just living with it'. It means I have to see how my body wants to be how I need to take each pain and get myself sorted out.
My spiritual work does not take a back burner it is who I am and who I want to be more of.

In preparation to become more in tune with my spirit I have become a bit more disciplined in how I treat this vessel I call my body.

Learning to listen to the rhythms and flows are so very important as it can help messure between a strong pain or a weak pain.

today I have a screaming shooting head pain that sometimes stays for longer than 10 -15 seconds but if I sit quietly and listen to my breathing and start to meditate. I am learning to become in tune with my inner soul.

Writing is so much of who I am and what I will achieve, without positivity I would not be where I am today.
I know how much fibromyalgia affects people I know and I know that together we support each other. Its about trying to let go of the stress that some times overwhelms your whole being... and in turn starts the pains in the muscles as we tighten up and try to protect ourselves from emotional pains.

I know that I may well have written this before but I feel this is an important issue and we all need to realise that its not how a person looks when they say they have a chronic illness its how they are inside and your support is seriously needed.

I know there are times when I don't get enough support and there are times when I do... but I know if I don't get out of bed every morning and have a little walk downstairs I would be stranded in bed and nothing would get done.

So I pace myself I do the dishes and tidy the counter tops down.. I sit down... have a little rest...
I do some writing like now .... and then afterwards I will have a little walk to the back door... I am setting myself different goals... I am aiming for walking up to 2 miles a day for a whole month... and taking my little dog with me. I am giving myself the task of doing small stretching exercises and I will then do what I can to get there.

Find Your Step away

I have not been well enough to write:

It all started last thursday lunch I tried to stop myself from chocking and nearly blew a gasket! but the next day my throat was swollen and my head was banging like a base drum.

I thought wonderful a cold to go with the fibro pains I was beginning to feel in my arms ( the type when your arms have had the skeleton removed and they are like rubber) well I carried on.

Friday and Saturday nights I had my grandson Rhys and we did what I felt I could. His mum came to collect him on sunday early to give me an opportunity for early bed.

I didnt know which way to turn. My daughter and I made dinner and went to lay and watch television for a while.

The pains in my head were like hot pokers stabbing me at various points on the left side of my skull towards and away from my left ear.

The best part was I followed all my normal regimes :

step away from stress .... yeh right I had fun with my grandson, and I was stressing over other family matters.

step away from exercise : mmm I walk to the local shop, and hang out my washing.... I could just about hang out half the laundry when I begged my daughterwho had just walked in from work.

My arms felt like chewy! and I knew if I was a cartoon I would look like one rubber man out of the fantastic 4!!! hee hee !



Step away from loud irritating noises: I live close to where the TT course is and the motor bikes one week ago where speeding it round the quarterbridge, but it really felt like my back garden.!!!



So as you can see all my 'step aways' where impossible until tuesday this week when my daughter has her normal day from work and she spoiled me. I stayed in bed but when I had to get up I walked like I was on a stormy pirate ship! she cheered me on, telling me jokes and reading out the titles of facebook pages that where just statements people may have said!



I know that it sounds like my step aways didn't work but it did not matter because laughter with my daughter and some well chosen comedy films by us both kept my spirit strong. Even now I am still on my bed not feeling as bad but felt the need to share this with you all. I had created my own personal 'step away' .



My shooting pains in my head may still be there but when I smile or laugh it distracts me.... makes me realise how blessed I am ........

And Remember look for your Step away and keep doing it. (c)